Local health leaders urge people to discuss their wishes during Organ Donation Week | Knutsford Times

Local health leaders urge people to discuss their wishes during Organ Donation Week

By on September 4, 2018

Local health leaders are urging people in eastern Cheshire to discuss their wishes during Organ Donation Week 2018.

The call from clinicians at East Cheshire NHS Trust and NHS Eastern Cheshire Clinical Commissioning Group comes after national figures showed around 3,000 lifesaving transplants were missed in the last year because families said no to donating their relatives’ organs.

Despite record levels of organ donation, family refusals are the biggest barrier to organ donation. Surveys show around 80% of people support organ donation. However only 33% of people have told their family that they want to donate and in circumstances where a family does not know their loved ones wishes, they are far more likely to refuse to give their consent to organ donation.

Dr John Hunter, East Cheshire NHS Trust’s Medical Director and Clinical Lead for Organ Donation, said: “Just because you know you want to be an organ donor does not necessarily mean your loved ones will know that too, so please make sure that you join the NHS Organ Donor Register and tell your family your wishes.

“The role played by families around donation is critical and they are much more likely to support organ donation if they know what your wishes are.”

Dr Paul Bowen, Clinical Chair of NHS Eastern Cheshire CCG and GP with McIlvride Medical Practice, Poynton, added: “If you lose a loved one in a situation which means they may be able to donate their organs, it is often in sudden and traumatic circumstances, so accepting that your family member’s decision can be hard.

“However, many families find great comfort in knowing that their loved one’s gift has allowed someone else to keep on living and prevented that person’s family from suffering unnecessary grief. That’s why it’s vital for local families to talk about the issue this week and make sure they understand each other’s wishes.”

The appeal is being supported by a local man who needs a heart transplant in order to remove his dependency on cumbersome and intrusive machinery.

Ian Wilton, of Obelisk Way, Congleton, an experienced mountaineer, was previously fit and healthy before he had a heart attack in Snowdonia National Park in August 2017.

Due to the time it took to rescue 54-year-old Mr Wilton from a mountain in bad weather and then transfer him to a suitable hospital, his heart sustained significant damage. He now survives by being constantly attached to a left ventricular assist device (LVAD) – an internally-implanted mechanical pump, powered by external batteries via a cable that enters his abdomen, which performs the function of a heart. Mr Wilton will need a heart transplant in order to begin to live normally again.

Mr Wilton said: “It still feels surreal to wake up every morning tethered to four metres of electric cable plugged into the mains, but I am incredibly grateful to have this LVAD – a life-limiting ‘bridge to transplant’.

“My life literally changed overnight – I’m no longer able to work, or even drive, and dependant on others to supervise and assist with many daily living activities.

“Certainly my story shows that anyone can find themselves in need of a transplant, and while a lifelong ‘donor card holder’ (now ironically with only eight of nine functioning organs available) I would urge everyone to sign up to be a donor and, most importantly, tell your family about your wishes.”

Organ Donation Week runs from September 3rd to 9th and this year, national body NHS Blood and Transplant is urging families to talk with the message ‘Words Save Lives’.

Last year, 66% of families in the UK agreed to donate. However that still meant 1,148 families declined to support organ donation. If all those families had agreed to donate that would have led to nearly 3,000 extra transplants, based on the average number of transplants per deceased donor over that year. There are currently 6,133 people on the transplant waiting list.

More than 25 million people are already on the NHS Organ Donor Register, join them today and tell your family you want to save lives. Register at www.organdonation.nhs.uk

About Lucy Thorpe

Lucy Thorpe is a freelance journalist who writes for the Knutsford Times - covering stories and news in and around Cheshire and Greater Manchester. If you've got a story to share, or would like to speak to Lucy, please email news@knutsfordtimes.co.uk

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