New trustee announced along with new look for Friends of Rosie | Knutsford Times

New trustee announced along with new look for Friends of Rosie

By on September 30, 2018

Following NHS England’s announcement that The Christie will be one of three hospitals to offer CAR-T therapy for children to treat types of leukaemia, Friends of Rosie is using September – Childhood Cancer Awareness Month – to highlight the need for more funding to get new research ideas off the ground.

It’s a little-known fact that childhood cancer receives less funding in the UK than any other type of cancer. While this is mainly due to its relative rarity in comparison to adult cancers, the lasting effects of cancer treatments have a far greater impact on a child’s growing body.

To mark Childhood Cancer Awareness Month, Friends of Rosie has announced the appointment of a new Parent Trustee, Katie Cutler. Katie’s son Arthur, from Bolton, was diagnosed with Acute Myeloid Leukaemia when he was just 16 months old and was treated at The Royal Manchester Children’s Hospital. Says Katie, “Arthur is thankfully two years in remission now but has been left with lasting effects having been diagnosed at such a young age. The recent CAR-T announcement is a great step in the right direction, but there are still hundreds of promising research ideas that don’t receive funding and never even get off the ground. We need to change that.”

The charity has also recently launched a brand-new website, with simpler donation options, lots of fundraising ideas and information about the research they fund. Many parents across Manchester and the surrounding areas have shared their child’s cancer story with the charity in a section on the site called ‘Rosie’s Friends’ to help raise awareness of the need for more research.

Says Communication Manager, Helen Griffin, “We’ve had the kind support of Manchester brand agency, Truth, who have helped to define our brand proposition and revitalise our brand, alongside the creation of a new fundraising pack. Our rose emblem symbolizes our namesake, Rosie, and the bright, rosy future that all children with cancer deserve. Wigan-based web development agency, Attain Digital, have also done a fantastic job with our new website helping to make donating and fundraising more accessible.

“We’re delighted to have been able to make these improvements without spending any of our supporters’ money, ensuring their donations go on research, not on marketing.”

The website was funded by the Manchester Guardian Society Trust and the branding work was done pro bono by Truth in celebration of their 10-year anniversary.

If you’d like to find out more about Friends of Rosie and give your support to childhood cancer research this September just visit friendsofrosie.co.uk to find out more.

About Lucy Thorpe

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